South Wales Central AM Andrew RT Davies has reiterated his calls for the Welsh Government to provide cystic fibrosis sufferers with access to a life changing drug.
Orkambi is a precision medical that tackles the underlying genetic mutation that causes the disease – and differs from prescription medicines that only tackle the symptoms.
It received its European license three years ago – and despite manufacturer Vertex Pharmaceuticals resubmitting an application to the Welsh Government – it is still not available on the NHS in Wales.
Mr Davies attended an event at the National Assembly for Wales last week – held by the Cystic Fibrosis Trust – and several constituents from the Vale asked Mr Davies to attend.
7 year-old Nancy Thomas from Llantwit Major suffers from the disease – and her family believe Orkambi would make a big difference to her condition.
Mr Davies said, “It was a pleasure to attend the event last week – and join the Cystic Fibrosis Trust in their calls for Orkambi to be made available on the NHS in Wales.
“Cystic fibrosis is an awful condition – and it is vital we provide sufferers like Nancy with the best possible care and treatments available.
“I will be writing to the Cabinet Secretary for Health and Social Services – requesting that action be taken to make the drug available – and I look forward to working with Vertex to make this a reality.”
[Picture: South Wales Central AM Andrew RT Davies is calling on the Welsh Government to take action to make Orkambi available on the NHS in Wales]