Davies calls for access to "critical" cystic fibrosis drug

South Wales Central AM Andrew RT Davies has reiterated his calls for the Welsh Government to provide cystic fibrosis sufferers with access to a life changing drug. 

 

Orkambi is a precision medical that tackles the underlying genetic mutation that causes the disease – and differs from prescription medicines that only tackle the symptoms.

 

It received its European license three years ago – and despite manufacturer Vertex Pharmaceuticals resubmitting an application to the Welsh Government – it is still not available on the NHS in Wales.

 

Mr Davies attended an event at the National Assembly for Wales last week – held by the Cystic Fibrosis Trust – and several constituents from the Vale asked Mr Davies to attend. 

 

7 year-old Nancy Thomas from Llantwit Major suffers from the disease – and her family believe Orkambi would make a big difference to her condition.

 

Mr Davies said, “It was a pleasure to attend the event last week – and join the Cystic Fibrosis Trust in their calls for Orkambi to be made available on the NHS in Wales.

 

“Cystic fibrosis is an awful condition – and it is vital we provide sufferers like Nancy with the best possible care and treatments available.

 

“I will be writing to the Cabinet Secretary for Health and Social Services – requesting that action be taken to make the drug available – and I look forward to working with Vertex to make this a reality.”

 

ENDS

 

[Picture: South Wales Central AM Andrew RT Davies is calling on the Welsh Government to take action to make Orkambi available on the NHS in Wales]